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{"id":906,"date":"2017-02-21T04:00:58","date_gmt":"2017-02-21T10:00:58","guid":{"rendered":"http:\/\/mom-gene.com\/?p=906"},"modified":"2017-02-20T12:44:17","modified_gmt":"2017-02-20T18:44:17","slug":"tricks-of-the-special-needs-trade","status":"publish","type":"post","link":"https:\/\/mom-gene.com\/2017\/02\/21\/tricks-of-the-special-needs-trade\/","title":{"rendered":"Tricks of the (Special Needs) Trade"},"content":{"rendered":"Last week I collectively spent three hours on the phone with the office of Charlie\u2019s geneticist. It was over the space of four phone calls with an average hold time of twenty minutes each. This gave me plenty of time to think.<\/p>\n
It was a snafu on their part that caused the time suckage. Someone on their end forgot to schedule the quarterly ultrasounds. Therefore, we had an appointment with the doctor\u2026and nothing to talk about. Rather than eat up the deductible for what would turn into an expensive meet-and-greet in a sterile environment, I cancelled the appointment. Silly me.<\/p>\n
Now the phone was ringing off the hook. Now EVERYBODY wanted to talk to me. Now they were my number #1 fan or I was on Mommy\u2019s Most Wanted list. How could I cancel? How could I not know how important these checkups were? What do you mean you haven\u2019t had the ultrasounds?<\/em> The five different people I spoke with could not follow the trail all the way back to the beginning where the lapse in the medical attention span began.<\/p>\nRather than take the guilt that was so generously offered me, I came up with a list. A list of things that make me a master of my trade as a special needs mom.<\/p>\n
<\/p>\n