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Animals on Display

Jonas climbed into an exhibit at the zoo last week. No kidding. I was giving Cora grapes and Jody was re-positioning Charlie’s wheelchair so that he would be out of the sun and could see the giraffes better. Here’s the best part. We did not even notice. I look up from the yellow plastic bowl I was handing Cora when a woman approaches me saying, “Excuse me, ma’am, is that your son?” The worst words

When the Special Needs Siblings Don’t Play Nice

We took the kids to the park last week because A) it was fifty degrees and they needed airing out, B) they were out of school and crazy, and C) you can only go to Costco and the mall so much. The actual park experience had been great. I walked Charlie around the perimeter in his wheelchair where he waved hello to every person, bench, and squirrel. The twins ran rampant under wooden tunnels, through

Why You Need Your Tribe as a Special Needs Parent

We hosted a New Year’s Eve gathering. Sounds fancy, yes? You’re picturing canapes and sparkling wine and bacon-wrapped things and the countdown and shiny dresses. Let me re-phrase. We had two friends over…for lunch. The lunch was pizza and not the fancy kind. This was the kind you find wedged between the nail salon and grocery store. It was one step up from a Hot ‘n Ready from Little Caesar’s. Outings to restaurants with a

Finicky Hope (Sunday Thoughts #3)

GENESIS 18:10-12 10 Then the Lord said, “I will surely return to you about this time next year, and Sarah your wife will have a son.” Now Sarah was listening at the entrance to the tent, which was behind him. 11 Abraham and Sarah were already old and well advanced in years, and Sarah was past the age of childbearing. 12 So Sarah laughed to herself as she thought, “After I am worn and my

I Play Favorites

Last week my mom and I took the kids to Steak ‘n Shake. It was a last minute decision because we had been on a mission to buy a new vacuum as our Christmas tree destroyed the last one (don’t ask). The restaurant was in walking distance from the store and dinner that involves no dishes and not having to load everyone in the car again is a no-brainer. The restaurant was crowded. Charlie was

Why My Child Will Always Need a Haircut

I try. I really do. But haircuts are not my thing. The one time I tried to cut my own hair (FYI never trim your own bangs), I looked like a Lego man whose hair you can pop off…if only. Charlie’s hair is a whole different animal. Take for instance its various textures. The front is relatively straight but tends to lean up and towards the right, like a pompadour. The back is blonder, coarser,

YooCanFind loves Charlie

Just popping in to share that Charlie is featured on YooCanFind.com. This is a great website for people with special needs. It offers support and encouragement for those of us who need to know there are others out there who get it! It is “the first inspirational community for people with disabilities and their families to share stories, buy products and empower one another to do anything.” Hooray for the munchkin! If you want to

15 Winter Activities for Kids (An Insanity Prevention Plan)

The four walls close in quickly when school’s out. The first day feels glorious: no alarm, nowhere to be, no reason to get out of the pajamas. Day two, reality sets in. How long can you color or shape playdough or watch videos or stack Legos before no one likes each other anymore? So in honor of this long road to January’s return to school, I give you my top 15 indoor activities for kids

Stable Living (Sunday Thoughts #2)

LUKE 2:16-20 16 So they hurried off and found Mary and Joseph, and the baby, who was lying in the manger. 17 When they had seen him, they spread the word concerning what had been told them about this child, 18 and all who heard were amazed at what the shepherds said to them. 19 But Mary treasured up all these things and pondered them in her heart. 20 The shepherds returned, glorifying and praising

Pageant Mom

You win some, you lose some. It’s a cliché for a reason. Sports, dating (which is kind of like a sport), cooking (at least for me), and any social event where you have to put yourself “out there” earns this phrase. I get that. I can handle it…when it comes to me. But when it comes to Charlie, anxiety has me tightening my laces when he has to “perform.” Take our most recent neurology appointment

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